You are here: Privacy Policy

Introduction

Spinal Research promises to respect any personal data you share with us and keep it safe.  We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect. Here we tell you in detail what we will and will not do with your information.

This policy includes:

  • What personal data we collect and how we use it
  • How we collect information about you
  • How we keep your data safe and who has access
  • Keeping your information up to date
  • Right of access and correction of your information
  • Changes to this Policy

If you have any questions, comments or suggestions, please let us know by contacting us at Spinal Research, 80 Coleman Street, London EC2R 5BJ

What personal data we collect and how we use it

The type and quantity of information we collect and how we use it depends on why you are providing it. 

Supporters

If you support us, for example make a donation, volunteer, register to fundraise, sign up for an event or buy something from our shop, we will usually collect:

  • Your name 
  • Your contact details 
  • Your date of birth 
  • Your bank or credit card details

Where it is appropriate we may ask for:

  • Information relating to your health (for example if you are taking part in a high risk event)  
  • Your motivation for giving, including whether this relates to your personal experience of cancer.  We will never make this question mandatory, and only want to know the answer if you are comfortable telling us. 

We will mainly use your data to:

  • Provide you with the services, products or information you asked for 
  • Administer your donation or support your fundraising, including processing gift aid
  • Keep a record of your relationship with us
  • Manage your marketing preferences
  • Understand how we can improve our services, products or information. 

We may analyse your personal information to create a profile of your interests and preferences so that we can contact you with information relevant to you.  We may make use of additional information about you when it is available from external sources to help us do this effectively.  We may also use your personal information to detect and reduce fraud and credit risk.  

If you enter your details onto one of our online forms, and you don’t ‘send’ or ‘submit’ the form, we may contact you to see if we can help with any problems you may be experiencing with the form or our websites.

Direct Marketing

With your consent, we will contact you to let you know about the progress we are making and to ask for financial and non-financial support.  We make it easy for you to tell us how you want us to communicate, in a way that suits you. Our forms have clear marketing preference questions and we include information on how to opt out when we send you marketing. If you don’t want to hear from us, that’s fine.  Just tell us so when you provide your data or contact us.

We do not sell or share personal details to third parties for the purposes of marketing.  But, if we run an event in partnership with another named organisation your details may need to be shared. We will be very clear what will happen to your data when you register.

Sharing your story

Some people choose to tell us about their experiences to help further our work. This may include them sharing sensitive information related to their health and family life in addition to their biographical and contact information.

We use some of the information provided, including gender, ethnicity or the type of cancer people have experience with, to target opportunities to get involved.  We will also monitor the types of people who are involved to ensure that the views we hear are representative of all groups.

If we have the explicit and informed consent of the individuals, or their parent or guardian if they are under 18, this information may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our annual report.  

We fund research for spinal cord injury, and collect Personal Data in order to fundraise and issue grants.

We may also collect and retain your information if you send feedback about our services or make a complaint.  

Children’s data

We collect and manage information from children, and aim to manage it in a way which is appropriate to the age of the child.  Information is usually collected when children attend our events or fundraise for us. But it can also be sensitive personal data such as for a story. 

Where possible and appropriate we will seek consent from a parent or guardian before collecting information about children.  Our events have specific rules about whether children can participate, and we‘ll make sure advertising for those events is age appropriate.  

How we collect information about you

We collect information in the following ways:

  • When you give it to us directly 

 You may give us your information in order to sign up for one of our events, tell us your story, make a donation or communicate with us.  Sometimes when you support us, your information is collected by an organisation working for us (e.g. Christmas card distributors), but we are responsible for your data at all times.

  • When you give it to us indirectly

Your information may be shared with us by independent event organisers, for example the London Marathon or fundraising sites like Just Giving or Virgin Money Giving.  These independent third parties will only do so when you have indicated that you wish to support Spinal Research and with your consent. You should check their privacy policy when you provide your information to understand fully how they will process your data.

  • When you give us permission to obtain it from your other online accounts

Depending on your settings or the privacy policies for other online services like Facebook or Twitter, you might give us permission to access information from those accounts or services.

The information we get from those services depends on your settings, so you should regularly check them.  

  • When we collect it as you use our websites or apps

Like most websites, we use “cookies” to help us make our site – and the way you use it – better. Cookies mean that a website will remember you. They’re small text files that sites transfer to your computer (or phone or tablet). They make interacting with a website faster and easier – for example by automatically filling your name and address in text fields. 

In addition, the type of device you’re using to access our website or apps and the settings on that device may provide us with information about your device, including what type of device it is, what specific device you have, what operating system you’re using, what your device settings are, and why a crash has happened. Your device manufacturer or operating system provider will have more details about what information your device makes available to us.

How we keep your data safe and who has access

We ensure that there are appropriate technical controls in place to protect your personal details.

We undertake regular reviews of who has access to information that we hold to ensure that your information is only accessible by appropriately trained staff, volunteers and contractors.

We use external companies to collect or process personal data on our behalf. We do comprehensive checks on these companies before we work with them, and put a contract in place that sets out our expectations and requirements.  

Some of our suppliers run their operations outside the European Economic Area (EEA).  Although they may not be subject to same data protection laws as companies based in the UK, we will take steps to make sure they provide an adequate level of protection in accordance with UK data protection law. By submitting your personal information to us you agree to this transfer, storing or processing at a location outside the EEA.

We may need to disclose your details if required to the police, regulatory bodies or legal advisors. 

We will only ever share your data in other circumstances if we have your explicit and informed consent.  

Keeping your information up to date

Where possible we use publicly available sources to keep your records up to date; for example, the Post Office’s National Change of Address database. We really appreciate it if you let us know if your contact details change.

Changes to this Policy

We may change this Privacy Policy from time to time.  If we make any significant changes in the way we treat your personal information we will make this clear on the Spinal Research website or by contacting you directly.